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Advisor(s)
Abstract(s)
Uma deficiência/incapacidade pode constituir-se como um fator de risco no
desenvolvimento da criança, acarretando maiores níveis de stress para o sistema
familiar, decorrentes das exigências do seu cuidado. As famílias de crianças com
Perturbações do Espectro do Autismo (PEA), estão sujeitas a níveis de stress mais
elevados inerentes às especificidades e carácter permanente da problemática. Este
estudo pretende compreender quais as principais preocupações, prioridades e
recursos das famílias para, a partir daí, construir um programa de educação parental
que permita capacitá-las a nível emocional e (in)formativo, melhorando a relação com
a criança/jovem.
Aplicou-se um plano de investigação-ação com recolha transversal de dados,
recorrendo a uma entrevista semiestruturada, Inventário de Necessidades da Família
(Bailey & Simeonsson, revisão, 1990), Índice de Stress Parental (Abidin & Santos,
2003) e um questionário sociodemográfico. A amostra de conveniência era composta
por 11 cuidadores de crianças com PEA de um Agrupamento de Escolas de referência
no Ensino Estruturado do Autismo do concelho da Figueira da Foz, abrangendo desde
o nível pré-escolar ao ensino secundário.
Concluiu-se que as principais necessidades destas famílias são de apoio
(in)formativo e a nível familiar e social, verificando-se uma parca rede de suporte
informal e uma lacuna a nível de suporte formal específico para PEA no concelho.
Regista-se ainda uma preocupação com o futuro, transversal a todas as faixas etárias
das crianças/jovens e níveis de stress superiores aos valores normativos, à exceção
do que se refere ao ajustamento emocional e afetivo da criança/jovem.
A disability can become a risk factor in children development, increasing stress levels in the family system due to their more demanding care and educational tasks. Families of children with Autism Spectrum Disorders (ASD) are subjected to increased stress levels as a result of the specific features of the disorder. This study aims to comprehend the main concerns, priorities and resources of the families and from there elaborate a parenting program that can empower them on an emotional and (in)formative level. An action research and transversal study was conducted, using the following instruments of data collecting: semi-structured interview, Family Needs Survey (Bailey & Simeonsson, revised, 1990), Parent Stress Index (Abidin & Santos, 2003) and a socio-demographic survey. The convenience sample was consisted of eleven caretakers of children/youngsters with ASD from an Early Childhood Intervention reference Scholl Group in the Figueira da Foz County, attending from pre-school to high school levels. Findings show that the main needs of these families are related to information support regarding the ASD and social and emotional support, thus showing a poor informal support net and a lack of formal support specifically adapted to ASD in the County. There’s also a denoted concern with the future, something that is transversal to all of the children/youngsters age range, and higher stress levels than the normative ones, in exception to the emotional and affective adjustment of the child/youngster.
A disability can become a risk factor in children development, increasing stress levels in the family system due to their more demanding care and educational tasks. Families of children with Autism Spectrum Disorders (ASD) are subjected to increased stress levels as a result of the specific features of the disorder. This study aims to comprehend the main concerns, priorities and resources of the families and from there elaborate a parenting program that can empower them on an emotional and (in)formative level. An action research and transversal study was conducted, using the following instruments of data collecting: semi-structured interview, Family Needs Survey (Bailey & Simeonsson, revised, 1990), Parent Stress Index (Abidin & Santos, 2003) and a socio-demographic survey. The convenience sample was consisted of eleven caretakers of children/youngsters with ASD from an Early Childhood Intervention reference Scholl Group in the Figueira da Foz County, attending from pre-school to high school levels. Findings show that the main needs of these families are related to information support regarding the ASD and social and emotional support, thus showing a poor informal support net and a lack of formal support specifically adapted to ASD in the County. There’s also a denoted concern with the future, something that is transversal to all of the children/youngsters age range, and higher stress levels than the normative ones, in exception to the emotional and affective adjustment of the child/youngster.
Description
Keywords
educação parental perturbações do espectro do autismo necessidades das famílias stress parental crianças necessidades educativas especiais