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Enhancing life with celiac disease: unveiling effective tools for assessing health-related quality of life

2024-04-29Journal article Open access
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dc.contributor.authorFalcomer, Ana Luísa
dc.contributor.authorde Lima, Bernardo Romão
dc.contributor.authorFarage, Priscila
dc.contributor.authorFabris, Samantha
dc.contributor.authorRitter, Ruth
dc.contributor.authorRaposo, António
dc.contributor.authorTeixeira-Lemos, Edite
dc.contributor.authorMargarida Correia Balula Chaves, Cláudia
dc.contributor.authorZandonadi, Renata Puppin
dc.date.accessioned2025-01-07T12:12:04Z
dc.date.available2025-01-07T12:12:04Z
dc.date.issued2024-04-29
dc.description.abstractAbstract Celiac disease (CD) is an autoimmune chronic enteropathy provoked by gluten ingestion in genetically predisposed individuals. Considering it´s only safe treatment is a lifelong gluten-free diet, the burden of living with the disease becomes evident, as well as the need to assess CD health-related quality of life (HRQOL). This review aims to identify and analyze the instruments used to evaluate the HRQOL of adults with CD. This integrative review using a systematic approach was designed to achieve high scientific standards. Accordingly, the search strategy was developed and executed as recommended by the guideline of the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement. Detailed individual searches were developed to Pubmed, Science Direct, Scopus, Web of Science, and Google Scholar. After careful analysis of the papers, 43 studies were included, in which seven instruments were identified: Celiac Disease Questionnaire (CDQ) (n=21), Celiac Disease Specific Quality of Life Instrument (CD-QOL) (n=17), Celiac Disease Assessment Questionnaire (CDAQ) (n=4), CeliacQ-7 (n=1), CeliacQ-27 (n=1), Black and Orfila´s self-developed instrument (n=1) and the Coeliac Disease Quality of Life Questionnaire (CDQL) (n=1). The CDQ and CD-QOL were the two most applied instruments. Since the first focuses on the physical and mental symptoms related to the disease and the second focuses on the emotional repercussions of adhering to the GFD treatment for life (dysphoria), the CDQ application is an interesting option for countries that struggle with public policies for CD patients and patients with active CD. The CD-QOL could be used for countries with strict regulations for CD and gluten-free products and populations in remission. When comparing results among different populations, it is preferable to utilize culturally validated instruments, which have been applied across multiple countries, providing greater comparability between study findings.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationFalcomer AL, de Lima BR, Farage P, Fabris S, Ritter R, Raposo A, Teixeira-Lemos E, Chaves C, Zandonadi RP. Enhancing life with celiac disease: unveiling effective tools for assessing health-related quality of life. Front Immunol. 2024 Apr 29;15:1396589. doi: 10.3389/fimmu.2024.1396589.pt_PT
dc.identifier.doi10.3389/fimmu.2024.1396589pt_PT
dc.identifier.urihttp://hdl.handle.net/10400.19/8713
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherMDPIpt_PT
dc.relationThis work was also funded by National Funds through the FCT-Foundation for Science and Technology, I.P., within the scope of the projects Refa UIDB/05507/2020 and UIDB/00681/202.pt_PT
dc.subjectCeliac diseasept_PT
dc.subjectgluten-freept_PT
dc.subjectquality of lifept_PT
dc.subjectquestionnairept_PT
dc.subjectsystematic reviewpt_PT
dc.titleEnhancing life with celiac disease: unveiling effective tools for assessing health-related quality of lifept_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.startPage1396589pt_PT
oaire.citation.titleFrontiers in Immunologypt_PT
oaire.citation.volume15pt_PT
person.familyNameRaposo
person.familyNameTeixeira-Lemos
person.familyNameMargarida Correia Balula Chaves
person.givenNameAntónio
person.givenNameEdite
person.givenNameCláudia
person.identifier1488390
person.identifier1395515
person.identifier.ciencia-idF019-6DAC-8250
person.identifier.ciencia-idF71E-A443-C8CB
person.identifier.ciencia-id7C19-6CEF-B511
person.identifier.orcid0000-0002-5286-2249
person.identifier.orcid0000-0002-6346-8319
person.identifier.orcid0000-0002-8103-7221
person.identifier.ridG-8329-2018
person.identifier.scopus-author-id55257860600
person.identifier.scopus-author-id22836614300
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationc26f2e58-29f4-41f6-bf25-e192d991d42e
relation.isAuthorOfPublication890a8ced-6151-42ba-8a82-f03275b2a1f2
relation.isAuthorOfPublication0de35fd7-5d3c-4954-a5ed-51c44d0579ea
relation.isAuthorOfPublication.latestForDiscoveryc26f2e58-29f4-41f6-bf25-e192d991d42e

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