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Health-related quality of life among celiacs in Portugal: a comparison between general and specific questionnaires

2024-03-04Journal article Open access
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dc.contributor.authorMargarida Correia Balula Chaves, Cláudia
dc.contributor.authorZandonadi, Renata Puppin
dc.contributor.authorRaposo, António
dc.contributor.authorNakano, Eduardo Yoshio
dc.contributor.authorRamos, Fernando
dc.contributor.authorFarage, Priscila
dc.contributor.authorTeixeira-Lemos, Edite
dc.date.accessioned2025-01-07T10:29:02Z
dc.date.available2025-01-07T10:29:02Z
dc.date.issued2024-03-04
dc.description.abstractObjective: This study aimed to compare the 36-Item Short Form Survey Instrument version 2 (SF-36-v2) (generic) and Celiac Disease Questionnaire (CDQ) (specific) questionnaires used to evaluate the quality of life (QoL) in celiac Portuguese adult individuals. Methods: This cross-sectional study used non-probabilistic sampling based on Portuguese celiac patients who accessed the online survey in 2022. The online data collection used a self-reported instrument composed of three parts: (i) socioeconomic, health, and gluten-free diet (GFD) adherence questions; (ii) SF-36 v2 - Portuguese version (generic questionnaire) and (iii) Celiac Disease Questionnaire (CDQ) (specific questionnaire). Results: A total of 234 individuals who accessed the survey completed the questionnaire. Seven of the eight SF-36 domains positively correlated to the specific questionnaire CDQ. The "General Health" domain (domain 4) showed a negative correlation with the CDQ. Differences in content between the two instruments might be able to explain this finding since the CDQ explores issues regarding the specificities of celiac disease (CD) and the lifelong GFD burden. About half of the sample from this study displayed poor diet adherence, it is possible that the SF-36 could not reflect the impact of CD treatment - the complete elimination of gluten from the diet - on patients' health. Therefore, this issue should be carefully evaluated in future research. Conclusion: Specific validated questionnaires for CD individuals, such as the CDQ, contemplate social, economic, and clinical variables that permeate the patient's life context. Therefore, these instruments may be more suitable for evaluating QoL in this public. However, using a general questionnaire such as the SF-36 would be indicated for comparing QOL between celiac patients and the general population or even between CD and other disease individuals. In this case, we recommend assessing GFD compliance for control parallelly.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.doi10.3389/fimmu.2024.1372369pt_PT
dc.identifier.urihttp://hdl.handle.net/10400.19/8706
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherFrontierspt_PT
dc.relationThis work is funded by National Funds through the FCT-Foundation for Science and Technology, I.P., within the scope of the projects Refa UIDB/05507/2020 and UIDB/00681/202.pt_PT
dc.relationThe study was also supported by FAPDF N° 539/2022 and the Brazilian National Council for Scientific and Technological Development (CNPq -N° 302602/2021-6).pt_PT
dc.subjectPortugalpt_PT
dc.subjectceliac diseasept_PT
dc.subjectgluten-free dietpt_PT
dc.subjectquality of lifept_PT
dc.subjectquestionnairept_PT
dc.titleHealth-related quality of life among celiacs in Portugal: a comparison between general and specific questionnairespt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.titleFrontiers in Immunologypt_PT
oaire.citation.volume15pt_PT
person.familyNameMargarida Correia Balula Chaves
person.familyNameRaposo
person.familyNameRamos
person.familyNameTeixeira-Lemos
person.givenNameCláudia
person.givenNameAntónio
person.givenNameFernando
person.givenNameEdite
person.identifier1488390
person.identifierH-9356-2012
person.identifier1395515
person.identifier.ciencia-id7C19-6CEF-B511
person.identifier.ciencia-idF019-6DAC-8250
person.identifier.ciencia-idC21E-2F9E-D910
person.identifier.ciencia-idF71E-A443-C8CB
person.identifier.orcid0000-0002-8103-7221
person.identifier.orcid0000-0002-5286-2249
person.identifier.orcid0000-0002-6346-8319
person.identifier.ridG-8329-2018
person.identifier.scopus-author-id55257860600
person.identifier.scopus-author-id7102339610
person.identifier.scopus-author-id22836614300
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
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relation.isAuthorOfPublication.latestForDiscoveryc26f2e58-29f4-41f6-bf25-e192d991d42e

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