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Entre laços e perdas : Um olhar dinâmico sobre a perda ambígua psicológica na família
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| 3.09 MB | Adobe PDF |
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Abstract(s)
Introdução: A perda ambígua psicológica, comum entre os cuidadores familiares de pessoa com demência (PcD), representa um desafio familiar contínuo marcado pela presença física e pela ausência psicológica do ente querido. Este fenómeno da perda ambígua impõe uma sobrecarga física e emocional considerável aos familiares cuidadores.
Objetivo: Analisar a forma como os cuidadores familiares de PcD percecionam a perda ambígua.
Metodologia: Estudo de natureza transversal, quantitativa e descritiva, com uma amostra de 10 familiares cuidadores de PcD cujos dados foram acedidos em consulta de enfermagem. Aplicação de um questionário sociodemográfico e da Escala de Limites Ambíguos (ELA), versão portuguesa. Foram considerados os procedimentos ético legais.
Resultados: Os fatores da ELA sobre a ambiguidade no cuidar (Fator A) e na ligação com a PcD e rede de apoio (Fator B) sugerem que os familiares cuidadores enfrentam uma perceção moderada de ambiguidade em relação ao seu papel e à sua ligação com a PcD.
Conclusão: A ambivalência, a confusão de papéis e a perda de ligação emocional aumentam a carga psicológica dos familiares cuidadores de PcD, a requerer intervenções de apoio adequadas para lidarem com emoções contraditórias e melhorar o seu bem-estar, um dos focos da ESF.
Palavras-chave: Família; Demência; Perda ambígua psicológica; Enfermagem de Saúde Familiar
Abstract Introduction: Ambiguous psychological loss, common among family caregivers of people with dementia (PwD), represents an ongoing family challenge marked by the physical presence and psychological absence of the loved one. This phenomenon of ambiguous loss places a considerable physical and emotional burden on family caregivers. Objective: To analyze how family caregivers of people with dementia (PwD) perceive ambiguous loss. Methodology: This is a cross-sectional, quantitative and descriptive study with a sample of 10 family caregivers of PwD whose data was accessed during a nursing consultation. A sociodemographic questionnaire and the Ambiguous Limits Scale (ELA), Portuguese version, were applied. Ethical and legal procedures were taken into account. Results: The LAS factors on ambiguity in caregiving (Factor A) and in the connection with the PwD and support network (Factor B) suggest that family caregivers face a moderate perception of ambiguity in relation to their role and their connection with the PwD. Conclusion: Ambivalence, role confusion and loss of emotional connection increase the psychological burden of family caregivers of PwD, requiring appropriate support interventions to deal with contradictory emotions and improve their well-being, one of the focuses of the FHS. Keywords: Family; Dementia; Psychological ambiguous loss; Family Health Nursing
Abstract Introduction: Ambiguous psychological loss, common among family caregivers of people with dementia (PwD), represents an ongoing family challenge marked by the physical presence and psychological absence of the loved one. This phenomenon of ambiguous loss places a considerable physical and emotional burden on family caregivers. Objective: To analyze how family caregivers of people with dementia (PwD) perceive ambiguous loss. Methodology: This is a cross-sectional, quantitative and descriptive study with a sample of 10 family caregivers of PwD whose data was accessed during a nursing consultation. A sociodemographic questionnaire and the Ambiguous Limits Scale (ELA), Portuguese version, were applied. Ethical and legal procedures were taken into account. Results: The LAS factors on ambiguity in caregiving (Factor A) and in the connection with the PwD and support network (Factor B) suggest that family caregivers face a moderate perception of ambiguity in relation to their role and their connection with the PwD. Conclusion: Ambivalence, role confusion and loss of emotional connection increase the psychological burden of family caregivers of PwD, requiring appropriate support interventions to deal with contradictory emotions and improve their well-being, one of the focuses of the FHS. Keywords: Family; Dementia; Psychological ambiguous loss; Family Health Nursing
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Keywords
Demência Enfermagem de família Família Luto Bereavement Dementia Family Family nursing
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