A carregar...
Publicação
O Impacto de uma criança com Perturbação do Espectro do Autismo na vida dos irmãos
| Nome: | Descrição: | Tamanho: | Formato: | |
|---|---|---|---|---|
| 5.44 MB | Adobe PDF |
Orientador(es)
Resumo(s)
A confirmação de um diagnóstico de Perturbação do Espectro do Autismo (PEA) em algum membro da família tem influência em toda a dinâmica familiar. Sendo os irmãos parte integrante da família, também eles sofrem o impacto de terem um irmão com PEA e as suas necessidades são uma componente importante a ser considerada nas intervenções direcionadas ao irmão e à família. Este projeto é de natureza exploratória e descritiva. O objetivo é compreender as perceções dos irmãos de crianças com PEA sobre o processo de ajustamento à problemática, o envolvimento entre os irmãos, dinâmicas familiares e necessidades de suporte. Para proceder à recolha de dados, recorreu-se à realização de quatro entrevistas semiestruturadas e ao questionário “Perfil de Envolvimento e Necessidades dos Irmãos”, adaptado para a população portuguesa por Reis et al. (2010), sendo que o original, Siblings Needs and Involvement Profile (SNIP), foi desenvolvido por Fish e seus colaboradores em 1995. Os participantes na entrevista semiestruturada foram duas mães e dois irmãos de crianças/jovens com PEA e os participantes no inquérito por questionário foram dez irmãos de crianças/jovens com PEA. Os dados foram examinados e analisados através de análise estatística descritiva e de análise de conteúdo. Os resultados obtidos indicam que, no geral, os irmãos/irmãs desta amostra vivenciam mais experiências positivas do que negativas pelo facto de terem um irmão/irmã com PEA. Apesar de sentirem algum impacto negativo, como mais responsabilidade, os aspetos positivos são os mais referidos. A maior parte gosta de brincar com o irmão/irmã com PEA e tem orgulho nele/nela, desenvolvendo mais empatia, compreensão e tolerância nas suas relações com ele/ela e com os outros. No entanto, as mães também referem alguns sentimentos negativos e sentido crítico e declaram que os filhos, em algum momento da sua vida, mostraram que necessitam de atenção e reconhecimento por parte dos pais. Em suma, os irmãos de crianças com PEA desta amostra revelam um perfil de envolvimento com os irmãos bastante positivo. O objetivo deste estudo foi contribuir para construir conhecimento que possa melhorar as vidas dos irmãos de crianças/jovens com PEA.
The confirmation of a diagnosis of Autism Spectrum Disorder (ASD) in a family member has an influence on the entire family dynamic. As siblings are an integral part of the family, they also suffer the impact of having a sibling with ASD and their needs are an important component to be considered in interventions aimed at the sibling and the family. This project is exploratory and descriptive in nature. The objective is to understand the perceptions of siblings of children with ASD about the process of adjustment to the problem, the involvement between siblings, family dynamics and support needs. This way we can contribute to build knowledge that can improve their lives. To collect data, four semi-structured interviews were conducted, along with the "Siblings Needs and Involvement Profile" questionnaire, adapted for the Portuguese population by Reis et al. (2010). The original questionnaire was developed by Fish and colleagues in 1995. The participants in the semi-structured interview were two mothers and two siblings of children/young people with ASD, and the participants in the questionnaire survey were ten siblings of children/young people with ASD. Data were examined and analyzed using descriptive statistics and content analysis. The results indicate that, overall, the siblings in this sample experience more positive than negative experiences due to having a sibling with ASD. Although they feel some negative impact, such as increased responsibility, the positive aspects are the most frequently mentioned. Most enjoy playing with their siblings with ASD and are proud of them, developing greater empathy, understanding and tolerance in their relationships with them and others. However, mothers also mention some negative feelings and critical thinking and state that their children, at some point in their lives, showed a need for attention and recognition from their parents. In short, the siblings of children with ASD in this sample reveal a fairly positive profile of involvement with their siblings. The aim of this study was to contribute to building knowledge that can improve the lives of siblings of children/young people with ASD.
The confirmation of a diagnosis of Autism Spectrum Disorder (ASD) in a family member has an influence on the entire family dynamic. As siblings are an integral part of the family, they also suffer the impact of having a sibling with ASD and their needs are an important component to be considered in interventions aimed at the sibling and the family. This project is exploratory and descriptive in nature. The objective is to understand the perceptions of siblings of children with ASD about the process of adjustment to the problem, the involvement between siblings, family dynamics and support needs. This way we can contribute to build knowledge that can improve their lives. To collect data, four semi-structured interviews were conducted, along with the "Siblings Needs and Involvement Profile" questionnaire, adapted for the Portuguese population by Reis et al. (2010). The original questionnaire was developed by Fish and colleagues in 1995. The participants in the semi-structured interview were two mothers and two siblings of children/young people with ASD, and the participants in the questionnaire survey were ten siblings of children/young people with ASD. Data were examined and analyzed using descriptive statistics and content analysis. The results indicate that, overall, the siblings in this sample experience more positive than negative experiences due to having a sibling with ASD. Although they feel some negative impact, such as increased responsibility, the positive aspects are the most frequently mentioned. Most enjoy playing with their siblings with ASD and are proud of them, developing greater empathy, understanding and tolerance in their relationships with them and others. However, mothers also mention some negative feelings and critical thinking and state that their children, at some point in their lives, showed a need for attention and recognition from their parents. In short, the siblings of children with ASD in this sample reveal a fairly positive profile of involvement with their siblings. The aim of this study was to contribute to building knowledge that can improve the lives of siblings of children/young people with ASD.
Descrição
Palavras-chave
Perturbação do Espectro do Autismo Irmãos Família Necessidades Perceções Autism Spectrum Disorder Siblings Family Needs Perception
Contexto Educativo
Citação
Editora
Licença CC
Sem licença CC