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Referenciação para cuidados paliativos pediátricos : Utilização da Pediatric Palliative Screening Scale
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| 1.54 MB | Adobe PDF |
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Abstract(s)
Enquadramento: Este relatório resulta do percurso formativo para aquisição de competências, incluindo um estudo sobre a referenciação para cuidados paliativos pediátricos. Estes cuidados destinam-se a crianças e adolescentes com doenças crónicas complexas, limitantes ou ameaçadoras da vida, desde o diagnóstico, ao longo do ciclo de vida e para além da morte, garantindo a sua continuidade. Para facilitar a identificação e referenciação atempada, utilizou-se a versão portuguesa da Pediatric Palliative Screening Scale.
Objetivos: Adquirir competências comuns e específicas do enfermeiro especialista em saúde infantil e pediátrica, através de reflexão crítica nos estágios realizados; desenvolver uma investigação que identifique crianças e adolescentes com doença crónica complexa acompanhados na consulta de desenvolvimento de uma Unidade Local de Saúde, que possam beneficiar de referenciação para cuidados paliativos pediátricos.
Metodologia: Realizou-se uma análise reflexiva das competências adquiridas em estágios na urgência pediátrica, cuidados intensivos neonatais e internamento pediátrico, fundamentada na evidência científica. Efetuou-se um estudo exploratório, descritivo, quantitativo e transversal com a aplicação da Pediatric Palliative Screening Scale, aos pais de crianças seguidas na consulta de desenvolvimento.
Resultados: Os estágios proporcionaram a aquisição e consolidação de competências específicas em enfermagem pediátrica, com base numa reflexão contínua e fundamentada. A aplicação da escala revelou que 20% das crianças avaliadas poderiam beneficiar da referenciação para cuidados paliativos pediátricos.
Conclusão: O percurso realizado permitiu reforçar competências profissionais e científicas. O estudo mostrou que persistem necessidades paliativas não identificadas na população pediátrica portuguesa, existindo instrumentos robustos e eficazes para promover referenciações oportunas e necessárias.
Palavras-chave: Adolescente, Criança, Cuidados Paliativos, Doença Crónica, Encaminhamento e Consulta
Abstract Background: This report results from the training path for the acquisition of skills, including a study about referral for pediatric palliative care. These palliative care are for children and adolescents with life-limiting and life-threatening conditions, from diagnosis, throughout the life cycle and beyond death, ensuring their continuity. To facilitate timely identification and referral, the Portuguese version of the Pediatric Palliative Screening Scale was used. Objectives: Acquire common and specific skills of the pediatric specialist nurse, through critical reflection during the internships; develop a study that identifies children and adolescents with life-limiting and life-threatening conditions followed in a developmental consultation at a Local Health Unit, who could benefit from referral to pediatric palliative care. Methodology: A reflective analysis of the skills acquired during internships in pediatric emergency, neonatal intensive care and pediatric hospitalization was carried out, based on scientific evidence. An exploratory, descriptive, quantitative, and cross-sectional study was conducted, applying the Pediatric Palliative Screening Scale to the parents of children followed in developmental consultation. Results: The internships allowed the acquisition and consolidation of specific pediatric nursing skills, based on continuous and evidence-based reflection. The application of the scale revealed that 20% of the children evaluated could benefit from a referral to pediatric palliative care. Conclusion: The path taken allowed for the reinforcement of professional and scientific skills. The study showed that palliative needs remain unidentified in the Portuguese pediatric population, with robust and effective instruments existing to promote timely and necessary referrals. Keywords: Adolescent, Child, Chronic Disease, Palliative Care, Referral and Consultation
Abstract Background: This report results from the training path for the acquisition of skills, including a study about referral for pediatric palliative care. These palliative care are for children and adolescents with life-limiting and life-threatening conditions, from diagnosis, throughout the life cycle and beyond death, ensuring their continuity. To facilitate timely identification and referral, the Portuguese version of the Pediatric Palliative Screening Scale was used. Objectives: Acquire common and specific skills of the pediatric specialist nurse, through critical reflection during the internships; develop a study that identifies children and adolescents with life-limiting and life-threatening conditions followed in a developmental consultation at a Local Health Unit, who could benefit from referral to pediatric palliative care. Methodology: A reflective analysis of the skills acquired during internships in pediatric emergency, neonatal intensive care and pediatric hospitalization was carried out, based on scientific evidence. An exploratory, descriptive, quantitative, and cross-sectional study was conducted, applying the Pediatric Palliative Screening Scale to the parents of children followed in developmental consultation. Results: The internships allowed the acquisition and consolidation of specific pediatric nursing skills, based on continuous and evidence-based reflection. The application of the scale revealed that 20% of the children evaluated could benefit from a referral to pediatric palliative care. Conclusion: The path taken allowed for the reinforcement of professional and scientific skills. The study showed that palliative needs remain unidentified in the Portuguese pediatric population, with robust and effective instruments existing to promote timely and necessary referrals. Keywords: Adolescent, Child, Chronic Disease, Palliative Care, Referral and Consultation
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Keywords
Adolescente Criança Doença crónica Inquéritos e questionários Referência e consulta Tratamento paliativo Adolescent Child Chronic disease Palliative care Referral and consultation Surveys and questionnaires Inquéritos e questionário
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