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- Quality of life perceived by children adolescents and their parentsPublication . Batoca Silva, Ernestina; Silva, Daniel; Duarte, João; Ferreira Aparício Costa, Maria Da Graça; Albuquerque, Carlos; Almeida, RuiThe impact of children’s and adolescents’ quality of life reflects in their development whilst adults, therefore the importance to intervene as soon as possible to encourage it. This study aims to identify the quality of life perceived by children/adolescents and their parents by investigating how quality of life connects with sociodemographic variables (age, sex, and schooling age). The aim of this study is to characterize the quality of life of children and adolescents in a school context and compare their perspectives with that of their parents and to analyze the influence of sociodemographic variables on the quality of life perceived by children/adolescents. A quantitative descriptive and correlational research design was used with a non-probabilistic and convenience sample, composed by children/adolescents and their parents. We used an ad hoc questionnaire with items to identify sociodemographic characteristics and a scale to identify quality of life using faces. The study sampled 567 children/adolescents with an average age of 12.40 years (±1.591), with 50.6% being female and 592 parents answered the questionnaire (parent version), with the average age of 40.43(±2.586), with 84.8% being female. 97.9% of the children/adolescents indicated a good quality of life while 2.1% indicated a bad quality of life, with an average value of 8.45 (±1.55). The data from the parents are similar (M=8.30±1.5), but not statistically significant. Subjective perceptions of quality of life constitute important data to promote health and are relevant indicators in the area of public health. Although our data reveals a good quality of life, an intervention at school with an approach to the factors that promote mental health and development is suggested.
- Os enfermeiros na promoção de esperança nos pais de crianças com doença crónicaPublication . Paixão, Sara; Ferreira Aparício Costa, Maria Da Graça; Batoca Silva, Ernestina; Maia, LuísIntrodução: Em Pediatria, a esperança pode ser considerada como um fator protetor dos profissionais de saúde e da criança/família. Objetivo: Analisar a influência da perceção de esperança de profissionais de saúde, no cuidar da criança com doença crónica e família. Métodos: estudo transversal e descritivo, realizado numa amostra de 102 profissionais de saúde da região centro de Portugal. Eram mulheres 92,2%, com média de idade de 39,9 anos. Utilizou-se um questionário de caracterização sociodemográfica e profissional e a Escala de Esperança (Ribeiro, Pedro, & Marques, 2006). Resultados: Dos profissionais, 62,7% enfermeiros, 36,3% exerciam funções no serviço de pediatria há mais de 10 anos. Os psicólogos e assistentes sociais e os do género masculino revelaram maior perceção de esperança, mas apenas a idade se relacionou significativamente com a esperança global. Conclusão: A vivência de esperança sustenta a aliança terapêutica com a criança/família e o enfrentamento face à doença de um filho.
- Os enfermeiros na promoção de esperança nos pais de crianças com doença crónicaPublication . Paixão, Sara; Ferreira Aparício Costa, Maria Da Graça; Batoca Silva, Ernestina; Maia, Luís
- Parents' experiences about their child's type 1 diabetesPublication . Batoca Silva, Ernestina; Macedo, Marina; Silva, Daniel; Ferreira Aparício Costa, Maria Da GraçaIntroduction: Type 1 Diabetes Mellitus is a chronic disease that is expanding and increasingly affects children and adolescents, resulting in changes in their lifestyle as well as in their family’s. Objective: To identify the experiences of parents regarding their child's Diabetes Mellitus. Methods: Qualitative, phenomenological study, having as participants 14 parents of children and adolescents who have diabetes and are followed up in consultations. We used the semi-structured interview and carried out content analysis. Results: Diabetes in children leads to a family restructuring and in particular to changes in diet and relationships with other children; represents a load of negative feelings and fears that lead to the demand for new parental skills and to the appreciation of health professionals and supports received. Conclusions: The results can help health professionals in the development of parental role, namely in accepting and adapting to the disease, in overcoming the difficulties and, above all, in improving the family's quality of life.